By wendy, on February 2nd, 2012%
By Wendy Burnett
I hate the “court shows” that have taken over daytime TV, but I get stuck watching them on a regular basis because my husband likes them . . .
That disclaimer being made, Judge Judy happened to be on my TV the other day while I was getting ready for work. The case doesn’t really matter, it was just another group of folks making themselves look stupid until Judge Judy came out with something to the effect of:
“if he was able to go pick up money at Western Union, twice, he doesn’t sound very disabled to me!”
This is a perfect example of the total ignorance of what a disability IS, and the complete lack of understanding that people with disabilities face every day from the “healthy” population.
Does Judge Judy perhaps think that if we are not totally confined to our homes, we don’t qualify as disabled? Has she forgotten that even those among us who use a wheelchair, and therefore are VISIBLY dealing with some form of disability, are still able to leave our homes? Continue reading Judge Judy and (the Lack of) Disability Awareness »
By wendy, on January 21st, 2012%
By Wendy Burnett
I’ve been seeing some questions online about what a “flare” is, and how you know when you’re having one. The simplest definition is “a time when your fibromyalgia symptoms get worse, then improve again.” (With the caveat that if they STAY worse permanently it’s not a flare, its a worsening of the illness.)
A “fibromyalgia flare” is actually more accurately described as a “symptom flare,” since it can involve ANY symptom or combination of symptoms related to the illness or to comorbid conditions. Most patients (and doctors) only look at pain and fatigue levels; but increased severity of IBS/other digestive issues, fibrofog, anxiety, depression, itching, skin sensitivity, or any other symptom related to your fibromyalgia is ALSO a flare.
Each patient tends to have their own specific definition, so if you ask 20 people, you’ll actually get 20 different definitions; but they’ll all have some things in common: Continue reading What is a Fibromyalgia “Flare”? »
By wendy, on January 20th, 2012%
 Image by blmiers2 via Flickr
By Wendy Burnett
When you have a chronic illness like fibromyalgia, every season has its challenges, but I think winter is the hardest to cope with. Not only is it cold, which tenses up muscles and increases pain levels; but there are so many other issues as well. Basically, winter with fibro sucks, and here are just a few of the reasons (if you have more, leave me a comment and I’ll add them):
- It’s cold, and frequently damp
- The weather changes all the time, which means barometric pressure changes and more aches and pains
- Shorter days and lower vitamin D levels that increase depression
- Being cooped up indoors without being able to open windows and doors increases exposure to indoor molds, toxins, and contagious illnesses; increasing allergic responses and physical stressors
- The weather makes exercising more difficult. Between higher pain levels and less ability to exercise outdoors or get to the gym we can slip into a vicious cycle of exercising less, which increases pain levels even more, and makes it even more difficult to exercise.
So how do we deal with all this “stuff” and keep our health from slipping? There are a ton of ways to minimize the winter “blahs,” but the most important one is: don’t give up! You may need to change some routines, but winter doesn’t have to be a miserable, depressing experience. I try to look at it as a challenge to my ingenuity, looking for new ways to get where I need to be and accomplish what I need (and want) to do.
Winter Survival Strategies:
Dealing with the cold (and damp): Layer, layer, layer! Several light layers of clothing, topped with a blanket; will keep you more comfortable than wearing one heavy item. Layering your clothes traps air between the layers and increases the amount of insulation they provide. If one pair of socks isn’t keeping your feet warm, add another light pair instead of taking off the ones you’re wearing and changing to a heavier pair.
If you’ve read much of this blog, you know how much I love hot packs . . . They’re even more wonderful in cold weather. Even if you don’t have a specific ache that needs heat (not likely, but it happens,) putting a hot pack in the chair or bed with you will help you stay warmer all over.
Flannel sheets are warmer than smooth cotton blends, and an electric blanket or mattress pad can make a huge difference in your ability to stay warm at night. They also provide gentle, all-over heat for the more general aches that tend to come with winter weather.
Shorter days and depression: Using full spectrum light bulbs will help, and so will adding a vitamin D supplement (low vitamin D increases depression, and with shorter, gloomier days our body doesn’t make enough.) Adding B vitamins can also help, either through supplements or more veggies.
Isolation is something else that can increase depression levels, and winter weather frequently keeps us at home. Finding online support through Twitter, Facebook, or forums can make a huge difference.
Being cooped up indoors: Adding a few potted plants will increase indoor air quality (if you have pets, make sure they’re safe if they get nibbled or keep them where your pets can’t munch them.) English ivy is an excellent plant for reducing indoor toxins, and it’s pretty easy to take care of too. There are many more options as well, and Treehugger has an excellent article on the subject, based on a NASA study on which plant is best for various pollutants.
To reduce the chances that I’ll catch something, I make sure I wash my hands regularly (with plain soap and water, antibacterials don’t help against viruses and increase the number of resistant bacteria,) get plenty of vitamin C and eat more onions and garlic. This last one is a bit controversial, because I also avoid vaccines like the plague. (The ONLY times in the last 15 years or so that my husband and I have actually had the flu were the two years we got a flu shot, and I’ve only gotten a cold once.)
Exercise: This is the toughest one for me because most of my exercise comes from walking to work, and in the winter that’s harder to do. If it’s too cold, or it’s raining, my husband and roommates make sure I have a ride, so I have to get a bit more creative. I’ll frequently do a couple of laps of the store I work at, or, on bad days, just get up and walk across the room a couple of times every hour or so. There are also videos on YouTube for fibromyalgia exercises that can be done while sitting down, which is especially helpful during flares because they’re very gentle and put less stress on your body.
By wendy, on December 31st, 2011%
 Image via Wikipedia By Wendy Burnett
Okay, you don’t know what “painsomnia” is, or if you have it, but you definitely have trouble sleeping on a regular basis, right? After all, that’s a common issue for anyone with chronic illnesses. Painsomnia is a term I came across on Twitter; I don’t know who came up with it, but it is absolutely perfect for what it’s intended to describe. (If you invented it, or know who did, please leave me a note in the comments so I can give credit where credit is due.)
painsomnia – combined word made up of the words pain and insomnia, used to describe an inability to sleep because of high pain levels.
There are tons of posts and articles out there with tips for going to sleep more easily and getting better quality sleep. There are also a lot of articles about ways to reduce your pain levels. There are, however, only a few posts or articles available that suggest ways to do both at the same time. (Most of them are found on blogs that focus on living with chronic illness in general, or a specific illness.)
Doctors aren’t much help with this one, since they usually want to throw another pill at the problem. More pills can be problematic for anyone with a chronic pain disorder like fibromyalgia, since sleeping pills and pain medications may not work well together. Even if you have medications for both pain and sleep, sometimes even the maximum safe dose isn’t enough and you need extra help.
There are lots of safe options you can try that won’t interact with the medication you take, Continue reading To Sleep, Perchance to Dream – But What if You Have Painsomnia? »
By wendy, on November 26th, 2011%
By Wendy Burnett
Day 25 – The Health Activist Writer’s Month Challenge Prompt (#HAWMC) for today is: “Never Have I Ever. You stick to your guns – now tell us about what. What is something you’ve never done but want to. What’s something you’ve never done and won’t budge on?”
Part one is easy . . . I’ve never been to Hawaii, and I WANT to go (permanently.) Actually, I guess any tropical island would do, I just happen to know that Hawaii has the internet connectivity I need.
 Randy Son of Robert via Flickr I’ve always loved the ocean and beaches, and being on an island would totally surround me with both. Water in all its forms nourishes my soul, relieves my stress, and relaxes my body. I’ve also always been fascinated by the juxtaposition of beauty and danger in volcanoes, and can never resist watching programs about them. In Hawaii, I would have both, along with warmer temperatures (winter is always the worst time of the year for me, with the cold increasing my baseline pain levels.)
I grew up in south Florida, on the coast, and I miss the feel of the salt air, the roar of the surf, and the ocean breezes. Continue reading Never Have I Ever . . . Now How CAN I? »
By wendy, on November 24th, 2011%
 Ed Schipul via Flickr By Wendy Burnett
Day 13 – The Health Activist Writer’s Month Challenge Prompts (#HAWMC) for today is “Open a book. Point to a page. Free write for 10-15 minutes on that word or passage. Post without editing if you can!” When I opened my book, the word I got was “acceptance,” so here goes.
The first step toward acceptance of a chronic illness is admitting that I’m powerless to make that illness go away, or to force my life back to the way it used to be. If I deny that I’m ill, or refuse to admit and adjust to my new limitations, I eliminate possibilities from my life.
This doesn’t mean that I’m powerless to make my life with illness better, or that I have to give up on being happy. Once I’ve admitted I can’t make it go away, and that my life is different; I can look for ways to reduce symptoms and find new ways to do the things I don’t want to give up.
Denial is a “stopper” though. Continue reading Accepting Chronic Illness – It’s NOT “Giving Up” »
By wendy, on November 24th, 2011%
 By NJR ZA (Own work) [CC-BY-SA-3.0 (www.creativecommons.org/licenses/by-sa/3.0) via Wikimedia Commons
By Wendy Burnett
It’s that time of the year again. Thanksgiving, Christmas, cooking, shopping, decorating, parties and other holiday activities can lead to over-doing things. Throw in the expectations (and demands) of family and friends and you get higher stress levels, too. Add it all together, and you get the perfect recipe for a serious flare, which can totally ruin your the season for you.
It doesn’t have to happen though. There are dozens of ways to cope with the holidays, and I’ve collected five posts and articles full of helpful tips for simplifying your celebrations, pacing yourself, and coping with the physical and emotional stresses of the season. Continue reading Top 5 Posts: How to Prevent Holiday Flares »
By wendy, on November 14th, 2011%
 Image by Big Grey Mare via Flickr
By Wendy Burnett
“Shit Happens” – I know you’ve heard the expression somewhere. There are lots of other ways to say it, but it happens to all of us. Things go wrong. They just do. You can’t prevent bad things from happening sometimes, but you CAN stop them from destroying you when they do.
There have been lots of bad things happening around here in the last several months, and we’re all stressed out about them, but I’m not totally freaked like I would have been a few years ago.
Instead of freaking out, I’ve been looking for other options like ways to bring in more money and ways to save on things I use all the time. Instead of becoming paralyzed, I’ve used the “shit” as motivation, and as fertilizer for the flowering of new ideas. Continue reading Shit Happens – Use it to Fertilize the Flowers »
By wendy, on November 7th, 2011%
 Image by ParkerSav via Flickr
By Wendy Burnett
The Health Activist Writer’s Month Challenge (#HAWMC) continues with the day 7 prompt: “Case of the Mondays. Write about something that gets you down, burns you out, or makes you sad. Purge it in a blog post. Turn it around at the end. Tell Tuesday why you’re ready for it.”
Mondays for me come more than once a week. Actually, I have a “Monday” anywhere from 3 to 6 days a week, because every day I have to go to work at the “awful place” is Monday.
If you haven’t already figured it out, I hate my job. I would literally prefer that someone shoot me than have to go into that place, but I’ve missed a grand total of one day in the last 18 months. I don’t have a choice, I have to work, or we don’t eat . . .
I work retail, part-time, because retail stores won’t hire full-time workers any more (and I couldn’t survive working full-time at the awful place anyway.) I spend my evenings standing on my feet slicing meat in a deli for anywhere from 4 to 8 hours at a stretch (usually after walking about a half mile to get there,) then walk home. 
I actually don’t mind waiting on customers and doing the cleaning when I close. Honestly, on the nights I actually have time to get all the stuff I’m supposed to do done, I enjoy the job. My customers are mostly nice, the regulars will come by and just kind of “hang out” for a few if I’m not busy; and the people I work with are pretty cool, too. Even my department manager is a sweetheart, and does all he can to not give me a schedule I can’t handle.
The issue is corporate, as usual. They demand more work than any THREE people could do in the amount of time they give us to do it in, then raise hell if it doesn’t get done. (I swear, I think it must be a requirement to get a lobotomy to be promoted to corporate. If it wasn’t, those people would have to know it’s not physically possible for one person to do what they expect.)
Let me give you an example. We’re allowed one person on duty at a time, and are expected to put out stock, wait on customers, make party trays, slice meat for the sub sandwiches another part of the department makes (on busy days, we go through about 40 pounds of ham and 60+ pounds of turkey, which all has to be sliced and weighed out into individual half-pound packets,) help out in bakery and making prepared food, put away deliveries and rotate stock, mark down things that are approaching the last day of sale, scan out outdated food, keep everything cleaned, set up new displays and reset all the stock every time they decide to move things around, and make sure we always have samples out.
We’re open 13 hours a day, and we’re allowed a total of 13 hours a day labor, so they expect us to also do all of the “closing” cleaning while we’re actually open. Now I don’t know about you, but I haven’t figured out how to be in two different places at the same time. Continue reading Moody Mondays – The Worst of It . . . »
By wendy, on November 3rd, 2011%
 Image via Wikipedia
By Wendy Burnett
The Health Activist Writer’s Month Challenge Prompts (#HAWMC) for day two is to write about a TV show based on my life or blog . . . I LOVE this! My mind is going wild with ideas, but they’re all based on the same theme. The only real problem right now is a name. I have absolutely no idea what to call it, and I’m hoping that by the time I hit the end of the post I’ll have come up with something.
The format is dead easy, as soon as I read the prompt I knew I wanted something like a cross between Dr. Oz and Dr. Phil (without the confrontational pseudo-therapy.) The focus is living well in spite of having chronic illnesses and educating “normals” about the difficulties we face every day.
This gives me a huge range of possible guests; life coaches and psychologists, medical doctors that specialize in pain management and various chronic illnesses, massage therapists, herbalists, aromatherapists, acupuncturists, reflexologists, chiropractors, health activists, nutritionists, specialists in ergonomics and accessibility, lawyers that specialize in disability issues and patients with different issues and combinations of illnesses.
Not only that, but the combinations are endless. Panels of patients discussing how hard it is to get adequate pain relief or trying to find doctors that don’t treat them like addicts, debates between allopathic physicians and holistic physicians, massage therapists and aromatherapists discussing how their specialties can be combined, discussions between pain management doctors who believe that opiods are a necessary tool and doctors who refuse to prescribe pain medications at all, etc., etc., etc.
So many possibilities, so many topics . . .
This post was written as part of NHBPM – 30 health posts in 30 days: http://bit.ly/vU0g9J
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"The moral test of a society is how that society treats those who are in the dawn of life . . . the children; those who are in the twilight of life . . . the elderly; and those who are in the shadows of life . . . the sick, the needy, and the handicapped."
---Hubert Humphrey
Welcome to the new home of Sick and Tired of Being Sick and Tired. I hope you'll enjoy the changes, and the new resources I'll be adding as I have time to work on the site. Things will look a bit odd while I learn where and how to modify the appearance, so please bear with me.
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