What is a Fibromyalgia “Flare”?

flare2 300x225 What is a Fibromyalgia Flare?

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I’ve been seeing some questions online about what a “flare” is, and how you know when you’re having one. The simplest definition is “a time when your fibromyalgia symptoms get worse, then improve again.” (With the caveat that if they STAY worse permanently it’s not a flare, its a worsening of the illness.)

A “fibromyalgia flare” is actually more accurately described as a “symptom flare,” since it can involve ANY symptom or combination of symptoms related to the illness or to comorbid conditions. Most patients (and doctors) only look at pain and fatigue levels; but increased severity of IBS/other digestive issues, fibrofog, anxiety, depression, itching, skin sensitivity, or any other symptom related to your fibromyalgia is ALSO a flare.

Each patient tends to have their own specific definition, so if you ask 20 people, you’ll actually get 20 different definitions; but they’ll all have some things in common: Continue reading What is a Fibromyalgia “Flare”? »

Surviving the Winter with Fibromyalgia

6707651893 7f538f7755 m Surviving the Winter with Fibromyalgia

Image by blmiers2 via Flickr


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When you have a chronic illness like fibromyalgia, every season has its challenges, but I think winter is the hardest to cope with. Not only is it cold, which tenses up muscles and increases pain levels; but there are so many other issues as well. Basically, winter with fibro sucks, and here are just a few of the reasons (if you have more, leave me a comment and I’ll add them):

  • It’s cold, and frequently damp
  • The weather changes all the time, which means barometric pressure changes and more aches and pains
  • Shorter days and lower vitamin D levels that increase depression
  • Being cooped up indoors without being able to open windows and doors increases exposure to indoor molds, toxins, and contagious illnesses; increasing allergic responses and physical stressors
  • The weather makes exercising more difficult. Between higher pain levels and less ability to exercise outdoors or get to the gym we can slip into a vicious cycle of exercising less, which increases pain levels even more, and makes it even more difficult to exercise.

So how do we deal with all this “stuff” and keep our health from slipping? There are a ton of ways to minimize the winter “blahs,” but the most important one is: don’t give up! You may need to change some routines, but winter doesn’t have to be a miserable, depressing experience. I try to look at it as a challenge to my ingenuity, looking for new ways to get where I need to be and accomplish what I need (and want) to do.

Winter Survival Strategies:

Dealing with the cold (and damp): Layer, layer, layer! Several light layers of clothing, topped with a blanket; will keep you more comfortable than wearing one heavy item. Layering your clothes traps air between the layers and increases the amount of insulation they provide. If one pair of socks isn’t keeping your feet warm, add another light pair instead of taking off the ones you’re wearing and changing to a heavier pair.

If you’ve read much of this blog, you know how much I love hot packs . . . They’re even more wonderful in cold weather. Even if you don’t have a specific ache that needs heat (not likely, but it happens,) putting a hot pack in the chair or bed with you will help you stay warmer all over.

Flannel sheets are warmer than smooth cotton blends, and an electric blanket or mattress pad can make a huge difference in your ability to stay warm at night. They also provide gentle, all-over heat for the more general aches that tend to come with winter weather.

Shorter days and depression: Using full spectrum light bulbs will help, and so will adding a vitamin D supplement (low vitamin D increases depression, and with shorter, gloomier days our body doesn’t make enough.) Adding B vitamins can also help, either through supplements or more veggies.

Isolation is something else that can increase depression levels, and winter weather frequently keeps us at home. Finding online support through Twitter, Facebook, or forums can make a huge difference.

Being cooped up indoors: Adding a few potted plants will increase indoor air quality (if you have pets, make sure they’re safe if they get nibbled or keep them where your pets can’t munch them.) English ivy is an excellent plant for reducing indoor toxins, and it’s pretty easy to take care of too. There are many more options as well, and Treehugger has an excellent article on the subject, based on a NASA study on which plant is best for various pollutants.

To reduce the chances that I’ll catch something, I make sure I wash my hands regularly (with plain soap and water, antibacterials don’t help against viruses and increase the number of resistant bacteria,) get plenty of vitamin C and  eat more onions and garlic. This last one is a bit controversial, because I also avoid vaccines like the plague. (The ONLY times in the last 15 years or so that my husband and I have actually had the flu were the two years we got a flu shot, and I’ve only gotten a cold once.)

Exercise: This is the toughest one for me because most of my exercise comes from walking to work, and in the winter that’s harder to do. If it’s too cold, or it’s raining, my husband and roommates make sure I have a ride, so I have to get a bit more creative. I’ll frequently do a couple of laps of the store I work at, or, on bad days, just get up and walk across the room a couple of times every hour or so. There are also videos on YouTube for fibromyalgia exercises that can be done while sitting down, which is especially helpful during flares because they’re very gentle and put less stress on your body.

 Surviving the Winter with Fibromyalgia

Never Have I Ever . . . Now How CAN I?

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Day 25 – The Health Activist Writer’s Month Challenge Prompt (#HAWMC) for today is: “Never Have I Ever. You stick to your guns – now tell us about what. What is something you’ve never done but want to. What’s something you’ve never done and won’t budge on?

Part one is easy . . . I’ve never been to Hawaii, and I WANT to go (permanently.) Actually, I guess any tropical island would do, I just happen to know that Hawaii has the internet connectivity I need.

Ocean Meets Lava 300x199 Never Have I Ever . . . Now How CAN I?

Randy Son of Robert via Flickr

I’ve always loved the ocean and beaches, and being on an island would totally surround me with both. Water in all its forms nourishes my soul, relieves my stress, and relaxes my body.  I’ve also always been fascinated by the juxtaposition of beauty and danger in volcanoes, and can never resist watching programs about them. In Hawaii, I would have both, along with warmer temperatures (winter is always the worst time of the year for me, with the cold increasing my baseline pain levels.)

I grew up in south Florida, on the coast, and I miss the feel of the salt air, the roar of the surf, and the ocean breezes. Continue reading Never Have I Ever . . . Now How CAN I? »

What Would I Do If I Had My Own TV Show?

P Television What Would I Do If I Had My Own TV Show?

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The Health Activist Writer’s Month Challenge Prompts (#HAWMC) for day two is to write about a TV show based on my life or blog . . .  I LOVE this! My mind is going wild with ideas, but they’re all based on the same theme. The only real problem right now is a name. I have absolutely no idea what to call it, and I’m hoping that by the time I hit the end of the post I’ll have come up with something.

The format is dead easy, as soon as I read the prompt I knew I wanted something like a cross between Dr. Oz and Dr. Phil (without the confrontational pseudo-therapy.) The focus is living well in spite of having chronic illnesses and educating “normals” about the difficulties we face every day.

This gives me a huge range of possible guests; life coaches and psychologists, medical doctors that specialize in pain management and various chronic illnesses, massage therapists, herbalists, aromatherapists, acupuncturists, reflexologists, chiropractors, health activists, nutritionists, specialists in ergonomics and accessibility, lawyers that specialize in disability issues and patients with different issues and combinations of illnesses.

Not only that, but the combinations are endless. Panels of patients discussing how hard it is to get adequate pain relief or trying to find doctors that don’t treat them like addicts, debates between allopathic physicians and holistic physicians, massage therapists and aromatherapists discussing how their specialties can be combined, discussions between pain management doctors who believe that opiods are a necessary tool and doctors who refuse to prescribe pain medications at all, etc., etc., etc.

So many possibilities, so many topics . . .

This post was written as part of NHBPM – 30 health posts in 30 days: http://bit.ly/vU0g9J

 What Would I Do If I Had My Own TV Show?

Current Projects: Titles of My Future Books

mmom3 300x225 Current Projects: Titles of My Future BooksBy
WEGO Health is having a month long event called “The Health Activist Writer’s Month Challenge” (#HAWMC) through November. It sounded pretty interesting, and I can always use more ideas for posts, so I decided to participate even though I didn’t find out about it until I was getting ready for work yesterday. I’m already a day late with my first post, but I figure what the hell, it’s only one extra post, so here we go . . .

The prompt for the first post is “Titles of my future book. Come up with 5 working titles and a quick book jacket synopsis.” This is actually an easy one for me, since all of these books are in the process of being written, and the synopsis is just the basic premise of each book. I don’t know if they’ll ever be published through a traditional publisher, but they will all be available as both e-books and Kindle editions when I finish them.

Making Your Own Medicine: A Guide to Adding Herbs to Your Treatment Plan - The use of herbs (and other alternative treatments) can improve quality of life and reduce the need for medications, IF they are used safely and appropriately. This guide provides information about how to safely integrate alternative treatments, how-to’s for creating herbal treatments, and resources for finding more information.

Suffering is Optional: My Life with Chronic Illness - Although I have pain and fatigue (and lots of other symptoms,) I don’t suffer from them. They don’t make me miserable, or cause me psychological distress, or make me unhappy. Continue reading Current Projects: Titles of My Future Books »

3 Ways to Explain Your Chronic Illness to Family & Friends

2787100 c6e086d868 m 3 Ways to Explain Your Chronic Illness to Family & Friends

Image by chadly via Flickr

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When you have a chronic invisible illness, one of the hardest things to deal with is the lack of understanding from your family, friends, and co-workers. “Normals” (those without chronic illnesses) have only had illnesses that last a few days or weeks, then go away; so when they see you on a “good” day, they think you’re “getting better.”

If your friends see you out shopping one day, and then the next day when they ask you to go to lunch, or help with something; and you can’t because the shopping wore you out, they get angry or think you’re “faking.” After all, you were fine yesterday. Continue reading 3 Ways to Explain Your Chronic Illness to Family & Friends »

FibroFOG – The WORST Symptom Ever?

3596829214 93ddeb6cbf m FibroFOG   The WORST Symptom Ever?

Of all the symptoms of fibromyalgia I have to deal with on a daily basis, FibroFog is absolutely the worst for me. I can deal with pain and stiffness, I’ve adjusted to always being exhausted, anxiety and stress are a constant undercurrent, but feeling like I’m losing my mind? THAT one bugs me.

I have to use lists constantly, or I’ll walk out of the house without my head one of these days. (Of course, a list does a lot more good if I can actually find it.) I have to laugh most of the time, because some of the things I forget are just SO ridiculous . . .

Have you ever gotten half way to work and realized you forgot to put on your bra? I have. Funny? Yes. Irritating? Even more so. I probably could have gotten away with it, considering it was in the winter and I was wearing three layers of clothes, but still . . . not appropriate. Besides, try explaining to your male boss that the reason you’re half an hour late is because you walked halfway to work before you realized you’d forgotten your bra and had to go back and put it on. NOT fun. Funny, yes, even hilarious, but definitely not fun. Continue reading FibroFOG – The WORST Symptom Ever? »

Making My Own “Medicine” for My Chronic Illness

Have you tried herbs or supplements for your chronic illness? I’ve had to find “other options” for treating my fibromyalgia and bipolar disorder because of my financial situation, so I’ve been doing a lot of research and collecting some tools for working with the herbs I like to experiment with.

mmom5 300x225 Making My Own Medicine for My Chronic Illness

Capsule Machine and Completed Herbal Capsules

In other words, I’ve been learning to make my own herbal treatments for my various symptoms. I ordered an “encapsulator” for making my own herbal capsules, and have been playing with that a LOT. Instead of buying bottles of herbal supplements, I’ve been making my own. Continue reading Making My Own “Medicine” for My Chronic Illness »

Dear body: A Letter to Myself About Chronic Illness

300px Chronic pain Dear body: A Letter to Myself About Chronic Illness

Image via Wikipedia

I’ve been a very, very bad blogger lately, and haven’t posted in forever. The short explanation is that work and the fibromyalgia have been playing hell with my body, and most of my non-work time has been spent doing the things that are absolutely necessary and sleeping. (Lots and LOTS of sleeping.) One of my blogging friends, Phylor, has posted a letter to the chronically ill part of herself, and it inspired me to start writing again (thanks, girl, I needed that!)

Dear body;

I owe you an apology . . . a big one. I know that many of the things I do make you worse, and I’m really sorry about that, Continue reading Dear body: A Letter to Myself About Chronic Illness »

Making My Own “Medicine” – Part 2

(Disclosure notice: Links to product pages in this post are affiliate links, and if you make a purchase using one, I will receive a payment. If you enjoy this blog and intend to make a purchase, I would greatly appreciate your use of my links to do so. It will not affect the price you pay, and will help me keep this blog online.)

Chronic illnesses tend to wreak havoc with family finances. Between the cost of treatment, and the reduction in the ability to work; having an illness like fibromyalgia, bipolar disorder, myalgic encephalitis (chronic fatigue syndrome,) lupus, migraines, or any of the thousands of others out there can destroy a family’s financial security and severely limit the ability to provide traditional healthcare.

My illnesses have put me in the position of not being able to afford the several hundred dollars a month I was spending on medications with my insurance (and with the insurance we have now, the more than $1000 a month they would cost would take pretty much our entire income,) so I’ve had to find other options.

It’s been an interesting journey, and there have been times when I’ve seriously considered just killing myself and getting it over with (mostly during the forced withdrawal from the psychiatric meds I used to be on for my bipolar disorder.) I’ve reached a point now where I’ve found enough other options to manage fairly well, and I’m actually happier without the prescriptions than I was with them. (Even if I hit the lottery tomorrow, I wouldn’t go back to taking all the stuff I used to be on.)

It’s more work than just popping a handful of pills several times a day, but using herbs and aromatherapy to treat my symptoms is also very satisfying.  I have much more control of what I’m putting into my body, I’m supporting the natural processes my body uses to heal itself rather than subverting them, and I’m not dealing with multiple side-effects that have to be treated with yet another expensive medication that comes with its own set of side-effects.

Natural treatments do take longer to “kick-in,” and I sometimes deal with slightly higher pain levels than I would if I could just take a heavy-duty pain-killer, but I don’t have to worry about becoming dependent on most of the herbal treatments I use, either.  (Which also means that I don’t have to worry about withdrawal symptoms if I switch things around or run out of something.)

There are several herbs that I make certain I always have on hand, and as I promised in part 1, those are the ones I’m going to focus on in this post.

Disclaimer: I am not a doctor, and nothing I say in this post is intended as medical advice. If you find the idea of using herbs in your treatment plan intriguing, be sure to do the research and discuss any changes or additions with your healthcare provider to ensure your safety.

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Making Skullcap Capsules

Skullcap: I use this one for pain reduction (it has actually helped more with my sprained shoulder than the Lortabs the doctor prescribed,) stress reduction, and help sleeping.  I try to get it online, from Mountain Rose Herbs, because it’s half the price that I pay at the organic grocery down the street. ($15 a pound, as opposed to $30; so even after I pay for shipping, I save money.)

It works well for headaches (especially tension headaches,) and muscle pain; and in combination with other anti-inflammatory herbs like ginger and turmeric, it also helps with my arthritis/fibromyalgia pain. Continue reading Making My Own “Medicine” – Part 2 »

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